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Loving Lampposts: A Frank Discussion on What It Means to Be Autistic

Loving Lamposts autism movie reviewLoving Lampposts is film which gives an encompassing view of autism.  The film looks at the differing viewpoints on what it means to be autistic, in a frank and open manner.  The filmmaker, Todd Drezner, is the father of an autistic child himself, so this film is not just a project for him, but also a quest for answers.

There are two seemingly very different viewpoints on autism.  The medical community and much of the general public see autism as a sickness, which must be fought and cured.  There is also a ‘neurodiversity’ movement, which proclaims autism is just a variation of the human brain, and should be accepted as such.  To them it is disrespectful to say autistic people should be cured.loving lamposts dvd review

Loving Lampposts presents the differing viewpoints from, parents of autistic children, the medical community and most importantly autistic adults.  From parents, there are discussions on how they have fought or come to accept autism.   Some children have indeed lost their autism diagnosis, others have not. Among the parents who have accepted that autism is the way their children are, they are still endeavoring to help their kids be the most they can be.  It is just their viewpoint which has changed.  The medical community takes a disease curing approach to autism.  Theorizing that if the underlying causes of the condition can be cured, the person will become “normal”.

Of the most interest to myself, and I would think most people who have a loved one with autism, were the interviews with autistic adults.  Many are proponents of the ‘neurodiversity’ movement.  They do not want to be treated as if they are damaged and sick.  They just want to be accepted as who they are.

I found Loving Lampposts to be a very thoughtful presentation.  As the mother of an autistic child, I sometimes feel a bit pulled between the cure vs. accept models.  As my daughter is still rather young, I am  focusing more on treatments that would be considered more in the “cure” camp, but for me the emphasis is more on helping her gain skills that will make her future life easier and more fulfilling.  Would I like her to lose her diagnosis, yes, but first and foremost I want her to be what makes her happy.  I guess that sort of puts me somewhere between these two camps.

Loving Lampposts came out on DVD March 29th.  It is now available for rent or purchase.  If you are the parent of an autistic child, an educator, or just someone who wants to better understand the “epidemic” of autism, I highly recommend this movie, from Cinema Libre Studio.

Disclosure: Media copy was provided for the purpose of this review.  All opinions are my own.

Autism Awareness Month

pink puzzle peice

As many of you already know, Autism Awareness Month kicks off today.  I have a number of new articles planned, plus some reviews of new books and movies concerning autism.

This evening the Empire State Building will light up blue in honor of Autism Awareness month, and many people will shine a blue light in their home in support of individuals with autism.

While light blue is the official color of Autism Awareness month, you will notice the puzzle piece I feature is pink.  It is in honor of my daughter, who was diagnosed with autism a little over a year ago.  Because of her, my personal focus is geared more specifically to girls with autism.  While girls and boys share most of the same symptoms and benefit from the same overall therapies, as one who expect, there is some different factors to consider.

 

Toys for Autism | Punch Ball Piggy

punch ball piggy sensory toy

I’ve found that my autistic daughter often doesn’t go for the expensive toys with all the bells and whistles.  Like many kids with autism, she has strong sensory needs, and the toys that really appeal to her are those that fill that need.

My most recent find was a somewhat disturbing looking animal punch ball.  Their were other animals available, but I grabbed the pig, along with bubbles and a nubby ball.  The toys were only $1.99 each, and buy 2 get 1 free (Walgreens).

punch ball piggy inflated

Punch ball piggy inflated for use as punch ball

I had a feeling she would really go for the silly pig, since it was squishy and the material had a weird feel to it.  I was right.  It has been a preferred toy for the past 5 days.  I have inflated it into a ball, then just as a squishy toy.  She likes it both ways, and it is easy to change the inflation of it.  I find it a little less disturbing to look at less inflated, so that is how it currently is.

toys for autism

Punch ball piggy gets a hug

Colorful Breakfasts for Fussy Kids

My daughter is fussy.  She loves many foods, but there are many others she snubs.  I do my best to provide a balanced diet for her, through giving as much variety among the things she does like on a plate.  With M it isn’t too hard because she adores fruit of all kinds.

colorful breakfast for fussy child

I always give her Gummy Multi-vitamins & DHA Gummies with breakfast each morning.  There are actually 4 different fruits on the plate (above), if you count the blueberries in the waffle.  A cup of 2% milk was served along side this plate for protein.

toddler breakfast - lunchThis one isn’t quite as visually exciting.  Just Granny Smith apples, red seedless grapes, PB&J (for more nutrients use whole wheat bread) and Gummy vitamins.

In general, this is what M has for breakfast pretty much every morning.  The some mornings the starch will be a bagel, toast or multigrain cheerios.  The fruits vary day to day, but I try and give her at least two kinds.  The gummy vitamins are always served.  Just because a kid won’t eat eggs, breakfast meats or hot cereal doesn’t mean you don’t have a huge array of options to give them.  Even with the simple formula I use to assemble a fast breakfast for M each day,  her plates are always different.

Share your breakfast by uploading a picture or description on the Kellog’s Share your Breakfast page, and help supply a breakfast to a needy child each time you do.

 

Starting Phases of ABA Therapy Autism Treatment

a warm winter day

My daughter “M” has a diagnosis of autism, while she is a generally happy child, and can be quite charming communication is very challenging for her.

After a 6 month wait to start the process of ABA, we were assigned a provider a few weeks ago.  I’ve been meeting with a Clinical Supervisor weekly, so that the program can be tailored to the needs of M.  At first I was a bit taken aback at the mention that it could take up to 6 months to actually get a regular worker into our house, but the process seems to be moving along much faster than that.  We’ve set up a tentative schedule of 20 hours a week, and should be starting sometime in March.

It will seem a bit weird to have someone in my home that long each week, but I am eager to see the effect this will have on M.

To help them understand my daughter, so  they can work with her more effectively, I have been charting “behavior problem” events, and charting every sound M makes during 10-15 minute segments of time.  Of course, since I started doing the charting she has only had a couple bratty episodes, both related to wanting another Nestle Delicias mango ice cream bar, after she was shut off.  She is a fiend for them.

She Said “Yeah” | The Chocolate Breakthrough

speaking for chocolate

As anyone with a child on the autism spectrum knows,  things which are seen as a nothing occurrences for typically developing kids, can be a heck of a big deal for our children.  My little girl has a very limited vocabulary so far, and generally gets by with charm & the occasional gesture or utterance.

When I picked her up from preschool today the teacher assistant was all happy because M had answered her.  She had said “yeah” enthusiastically when asked if she wanted an M & M.  My daughter LOVES chocolate, and of course doesn’t get it all the time.  This was a breakthrough for her at school.  She does answer me at home, but this was the first time she had verbally answered a question posed to her by this teacher.

Amazing what a little chocolate can do.

Autism Isn’t Quite what I Expected

Today on the Special Needs Blog Hop, the question was “What do you love most about your child?”

The answer may surprise anyone not familiar with the reality of autism.  It is a wide spectrum, and the classic view of a withdrawn child with little interest in others is not descriptive of many children with autism.  My daughter is a happy little girl, who quietly charms the pants off everyone she meets.  She is a craver of hugs, and attention.

My favorite thing about her is her bigs smiles and infectious laugh.  She can make even the worst day seem terrific.

AutismLearningFelt

Girls with Autism: Finding a Place to Fit In.

Girls with autism fitting in

I cried on the way home from dropping my daughter off at preschool today.  The  last month or so has been a little hard, trying to find a place for her to fit in.  As  my regular readers already know, she is that rare bird, a girl with autism.   M was in a small special education preschool class, with the rest of the 3 year olds, but she was the only girl.  Two of the boys screamed a lot, and it made my daughter nervous and upset.  Finally, she was starting to pull back and cry when I was walking her up to school.  The last day she was in that class, I nearly turned around and took her home.

M has been in the afternoon class with the 4 year olds, for a two and a half weeks now.  The first few days she cried a lot. She has the same teacher, and clung to her a lot those first days.  Around the third or fourth day, M started to participate, and her mood at school became much more positive.  There are several other little girls in the class, and almost half the children are typically developing peer models.  Things seemed to be going well.

Last Thursday, I picked her up, and the note in her bag said she had a difficult time and cried all day.  Was there anywhere she would fit in?  These children are better role models, but she is the “little kid” in class, they are all a little older than her.  Where could my little girl fit in…my mind spun, and I started to worry even more than I usually do for her.

That evening I realized she was coming down with a cold, and kept her home on Friday, to recover over the long weekend.  She was happy to go to class on Tuesday, and when I picked her up one of her classmates was holding her hand.  I asked her later if the little girl was her friend and M just gave me a big silly smile.

Today, she practically ran to the truck to go to school, skipped to the door, gave her teacher a big hug, and went into the classroom without looking back.  On the way home, with tears streaming down my face, I realized…  she has finally found a place to fit in.

Girls with Autism: Isolation Among Boys

girls with autism

Girls with autism have a lot to face in life, perhaps even more than boys with the condition.   As many of you already know.  My little girl has autism.  If she and I were in the store beside you, you would quite likely have no idea, she had any issue at all, unless she got excited and flapped her hands and attempted to verbalize, or you asked her a question and she didn’t answer.  She is a very charming child, looks people in the face and frequently smiles.  She is very huggy, and while she doesn’t quite “get” the social dynamics of play, she generally enjoys being in the company of other children. She has shown a preference for the company of other little girls over male children, but rarely seeks out the interactions.

Before my daughter got her autism diagnosis, she was described as having sensory integration disorder.  Since she was so interactive with me, I believed she did not have autism.  I think many parents fall into this trap, especially with little girls, who may not show some of the more well known symptoms of autism as distinctly, as their male counterparts.  Luckily for us we live in a state, which does have good services available for autistic children.

Although, we have been able to get some quality services for our daughter, the fact that girls with autism are the minority among those with the diagnosis, has put her in the position of having mostly male classmates so far.  She attended play groups at the Livingston Center Early Intervention program run by the Groden Center (an excellent provider of services to autistic individuals of all ages), for 7 months.  During that time, she did have another girl in some of her classes, but more often than not girls with autism find themselves swimming in a sea of boys.

Autistic girls are already challenged in grasping social skills, which are far more important in the culture of girls.   Now add the factor that they generally don’t have other little girls, to even practice playing with, and the problem is magnified.

autistic girls isolated among boysGirls with autism do not share all the same interests, as males with the diagnosis.  Thomas the Train is a common  favorite of autistic boys in my daughter’s age group.  She will watch the show, but could care less about anything associated with it.  She loves Caillou and Yo Gabba Gabba.  She excitedly picked out a Disney Princess Purse last time we went shopping, and carried it through the whole store.  Her preferences in shows and toys, do show a vast difference from the boys.

I feel greater attention should be placed on finding appropriate class placements for girls with autism.  In some cases, I understand there may be little that can be done, but on a state or county wide level efforts could be made to create an environment more beneficial to autistic girls.  On a town by town basis, these girls will more often than not be left as the isolated girl in class.

My daughter’s preschool teacher, also has an afternoon class. Although the children in it are slightly older than my daughter, there are four girls in it.  We will be trying her in this class starting tomorrow.  I truly believe this will be very beneficial for her.  Read the follow-up post Girls with Autism: Finding a Place to Fit In

This post is not in any way endorsed or sponsored by the Groden Center, but if you have a child under 3 years of age with autism and/or significant developmental delays, and live in Rhode Island, I personally recommend their Early Intervention Playgroups (consult your Early Intervention service coordinator).  Myself and every parent I have spoken to who have used their services have been very happy with them.